Blindness Will not Stop me

Blindness Won’t Stop Me

The Morning My Life Changed
Life will always bring challenges, but those challenges do not have to break a person. I have learned that a hard moment can either take a person down or teach that person how strong they really are. With courage, determination, and faith, hardship can become the very thing that builds strength and resilience.
I can still see the hall light shining in my bedroom that night. It was the 5th of May in 1986, and I remember lying in my bed trying to fall asleep while that light came through my room. The twins were scared, so my mother always let them Sleep with the hall light on. I wanted to sleep, but the light kept bothering me. It felt like it was shining right in my face and keeping me out of dream land.
That night already felt heavy to me. My room was dark crimson red and black, and the black curtains matched the trim around my room. Those colors were pretty, but they also fit the mood I was in. I had a lot going on as an adolescent, and losing my vision brought depression with it. There were nights When I could not sleep well because my mind would not be quiet. I was young, but I already knew life was changing around me.
I still remember the smell of dinner that night. The smell of fried chicken stayed in the air long after everyone finished eating. It was one of those smells that stuck with me. When I think about that night, I do not just remember what I saw before I lost my vision. I remember the light, the colors in my room, the smell of food, and the nervous feeling that something was wrong.
Music helped me settled my mind when I couldn’t sleep. I put on my headphones and turned on one of my favorite radio stations, Magic 108 FM. The “quiet Storm Radio Show” was soothing to me. It helped me to stop focusing on the hall light and all of my thoughts that were running through my head. I finally settled down and fell into a deep sleep.
I had a real good dream that night. In my dream, I was roller skating around the block, and I did not fall, not one time. That made me feel so happy because I loved to skate. Back then, I skated five days a week, and it was something I really enjoyed. Looking back now, that dream means something to me because it showed the part of me that felt free before my life change d. In that dream, I was moving fast, having fun, and not worrying about being afraid.
The next morning, I was sleeping so hard that it took my sister a while to wake me up. She kept calling my name, but I did not answer right away. Then she jumped on my bed and shook me, saying, “You are going to miss your bus if you do not get up and get ready for school.” I opened my eyes and said, “What happened? It is dark outside.” My sister said, “Erica, stop playing. It is time to get ready for school.” At first, I did not understand what was going on. I blinked and tried to look around my room, but everything was still dark. That was when fear started rising in my chest because I knew my eyes were open, but I still could not see anything.
I got out of bed, bu t everything felt different. I started feeling my way around my room because I coul dn’t use my eyes to guide me . I reached out with my hands and touched the bed , wall, and anything else I could touch to find my way out of my room. My body felt unsure, and my heart was beating fas ter. I was trying hard not to panic, but deep down I knew something was wrong, and that scared me.
My sister knew something was wrong when she saw me feeling my way down the hall toward the bathroom. I could hear the fear in her voic e. When I stepped into the bathroom, she screamed and started crying. Her crying scared me even more because it made everything feel real. In that moment, I knew this was not just something I was imagining. My vision had changed, an d It was scary. I could hear my mother running upstairs to see what was going on while my sister cried so hard that nothing she said made sense. While I stood in the bathroom reaching for the light switch because part of me still thought the power might be out. I touched the switch and tried to make the darkness go away, but the light was on and nothing changed. I placed my hand on my face and touched my eyes to make sure they were open. That is when the fear really hit me. I did not know what to fee l at first. I was confused, scared, sad, and nervous all at the same time. I started to cry because I kne w my vision was not the same as it was when I went to bed the night before. I could not fix it by turning on a light. My mother did not know what was happening at first. Two of her daughters were crying, and the whole morning felt like it had turned chaotic. I found my way out of the bathroom and said the words out loud: “I am blind.” My mother hugged me and told me, “You are going to be okay.” I wanted to believe her, but in that moment I was scared of everything that was ahead of me.
Deep down, because of what I had already been dealing with, with my vision loss, I knew this day would come. That did not make it easier. Knowing something may happen and living through it are two different things. I was afraid, but I still went to school that day. I did not know how I was going to get through the day, but I went anyway. Going to school that day showed me how hard this new challenge would be. The hallway felt different because I could hear people around me, but I could not see where they were. I felt like everybody was looking at me. Some kids were cruel. They called me names like “blind bat,” “four eyes,” and “cockeyed.” Those words hurt, and I carried them with me that day, even though I tried to act strong. I did have help, and that made a difference. My teacher helped me get through that long day. I stayed inside during recess because I wanted to read a book, and reading braille felt safer than being outside around kids who picked at me, and did not understand what I was going through. I felt sad, scared, and nervous, but I also made it through the day.
As time passed, blindness became my normal. It took me two years to work through my depression. After that, I became a normal teenager, if you can call it that. I started making friends and going to youth activities at church. Those activities were fun at times, and sometimes they were not. I had even more fun with the friends I met in high school. High school was a lot better than middle school. I sang in the choir, went to football games, and ran around with friends. I graduated in the top 100 of my class. I also moved out of my mother’s house at the age of 19 and moved to another state, where I had my own apartment. I held down jobs, got married, raised my two daughters, raised two stepsons, got divorced, and became a single mom. I taught myself how to use a computer while my daughter slept. My computer ha s software that tal ks to me. The software is called JAWS, which stands for Job Access With Speech. I worked in places that were not the best places to work, and I felt like I was wasting my skills. Eventually, I did end up working for a company where I could use what I knew. Right now, I am unemployed because the job I had closed the office here in Missouri and sent the work to Florida. College is now the best choice for me because I have been on so many job interviews that I finally said, “It is time for me to sit on the other side of that desk.” I got tired of the rejection from interviews, especially knowing I did well and still did not get the job . It is the life I live every day now. I have faced many challenges, but I have also learned how to figure things out. I learned how to keep moving even when life felt unfair. I learned that being blind did not mean my life was over. It meant I had to learn how to live my life in a different way.
This is my life now, and I am going to live it to the fullest. Life might have been tough, but I learned and I keep on learning. Life will pass me by, and if I do not get out there and live it, that is on me. I wake up every morning appreciative because I do have a great life. Courage, determination, and faith helped me become resilient, and they continue to help me keep going. insertion point at start

Grief

My life in the last five months

I started college in August. Things were kind of crazy, but we got it together. I had a couple of classes that I didn’t have books for. I was to get through by studying my notes. Things seem to be working just fine. It is Oct and I was out with a friend when I received some bad news. My father died from a sudden massive heart attack. It was right in the middle of midterms. I did quite well on those midterms. Considering I could not concentrate on my class work. Well I found some middle ground and was doing well in my classes. I was looking forward to Thanksgiving. We had a great Thanksgiving withthe family. My daughters were not at my sister’s for the holiday because they had Covid. Everything went down hill the very next day. I will never forget this as long as I live. My youngest daughter found her father deceased on Friday after Thanksgiving. It started out like a normal morning. I was talking to my daughters and we were doing a little Christmas shopping. My youngest daughter was going to call me back because she was going to look online for me to find something for my son-in-law. My daughter did call me back, but it wasn’t about Christmas gifts. I answered and realized something was wrong. My daughter said mom dad is dead. I was not ready to hear something like that. I jumped in an Uber and got to my kids as fast I could.

Christmas wasn’t the same this year. Even though we were divorced I still saw my daughters father on holidays. So since I had a few weeks off from school I have been reflecting on our life and grieving. I have my good days and bad days. Grief will catch you when you are not expecting it. I am doing ok and looking forward to the next semester. With everything going on in my life I did make the dean`s-list. That is all for now! Take care and I will be back in a while.

Deaf-blind Panel

Hello everyone.

 

I was invited to be on a panel on April 9th. This panel was called Deaf-blind employed.

 

I was nervous and just a little scared but that went away when I started speaking.

The morning started off as a normal day. I woke  up and read my daily devotion.

Got all ready for the panel. My day wouldn’t be normal if there wasn’t just a little chaos.

The chaos did not happen to me. It happened to a friend. He had woke up and   couldn’t find his cochlear  implant.

This was  just a small thing to some but not to him. My friend is deaf-blind just like I am.

The thing is his hearing loss is a lot more severe than my hearing loss. I wear hearing aids and adjust them through out the day.

So I went on to the room where I was going  to be on the panel.

I skippped breakfast because I would not have time and forgot I had a pack of pop tarts in my hotel room.

So the cochlear implant was found a few minutes before the panel was to start.

I had fun teasing my friend about the healthy breakfast I had  afterwards!  

Also my SSP had taken our things out to the car. We were checking out and leaving later so my pop tarts were in the car.

I had forgotten about them until I was unpacking after returning home. For  the people who don’t know what a SSP Is, that is someone who assists the deaf-blind in daily  tasks so they can live more independently and more  enjoyable.  

So my very very very healthy breakfast was Dove chocolate and a bottle of water.

My friend and I had a good laugh about this memory that was made.

 

I am going to share the questions and answers with you all. I hope you will get a better understanding of me and my journey as a deaf-blind person.

 

 

Where do you work?

I worked for a company named RCH cable. 

What is your job title?

I was a dispatcher/customer service.

How long have you worked there?

I worked there for a little over 2 years. Was let go when the company closed that office and sent the work to Florida.

In one or two sentences, describe your vision and hearing loss – when it began, tell us about your vision and hearing.

I lost my vision in 1986 do to Glaucoma.

My hearing was not so good as a kid. 

They focused more on the vision loss.

I finally felt like it was time to find out about my hearing about 10 years ago

I had taken my daughter to an appointment and she asked the nurse to check my hearing.

The nurse did a hearing test. I had a hard time hearing the beeps .

So I started my journey to the Center for hearing and speech. At that time my hearing was bad enough for hearing aids, but I could not afford them. For the simple fact Medicaid would notcover them because I did not meet their criteria to cover the cost.So I just did the best I could for the next 6 years until I could get the state to cover my hearing aids.

What type of training, experience, and/or education was needed to get/qualify for your job?

I had some computer training for several years. I had on the job training for 8 weeks. The lady who worked along side me  showed me a lot. She was also Deaf, but she could read lips and wore hearing aids as well.

Also an employee of the state worked with me as well. He helped with assistive technology to make the job doable.Howdid you find your job?  Did an agency and/or person help

I found my job by someone just putting my name out there and That person’s Name is Greg Mark. I’ve known him 26 years. He knew what I could do on a computer. So I would like to thank Greg for believing in me. 

What technology do you use at work, or for work?

I use A screen reader called  Jaws for my computer. I also use a braille display. Also have a devise called Orcam Reader for reading quick notes. 

 Did you get assistance funding the technology, and if so, where?

Rehab services for the Blind. Got me all the technology I needed  for work.

How do you communicate with coworkers?  And how do you communicate with customers or students, if applicable?

I communicated just fine with coworkers. The customers were on the phone. I just wore head phones over my hearing aids. I had to make adjustments through out the day. I  just made it work.

What advice would you give to someone seeking employment or to professionals who are working with people who are Deaf-blind to find a job?

My advice to someone who is seeking employment. Don’t give up and keep trying. What I mean please don’t listen when someone says, You can’t or you won’t be able to do this work. Listen to yourself. You know what you are capable of doing.  As a deaf-blind person I can not hear the words. You can’t and you won’t. I hear you can and you will.

To a professionals who are willing to hire us. Please give us  a chance  You never know it could be the best decision you could  have made.  If we fail and not able to do that job at least we can say you gave us a chance.

Merry Christmas

December 24 – Emmanuel (Seeds 4 The Soul)

The long-awaited pronouncement finally came. Messiah had come. The promised seed of woman, the incomparable Prince of Glory, the Savior of souls had arrived. Emmanuel, as Isaiah prophesied, was His name: God with us. The most unthinkable, unbelievable, yet undeniable event in history occurred at the birth of Christ: God became man.

This is not only a foundational doctrine of our faith; it is the one of the most comforting truths in history. God came to us. God became one of us. He placed Himself in the human experience. The Creator condescended to the elements of creation. He did this so that He could sympathize with our grief and sorrow. He knew what it was like to cry, to sweat, to grow weary, to become hungry, to laugh, to sing, to suffer. He experienced life “with” us.

Today, He is still with us. This is the reality of Christmas. He is with us in our pain. He is with us in victories. He is with us in our loneliness. He is with us at all times. Christmas not only reminds us that Christ came, but that Christ abides. No, Christmas is not a once-a-year holiday from work and school; it is an ever-present truth about the ever-presence of Christ. Because God is for us, He is in us, and forever with us! Emmanuel: a name like none other.

Embracing a Colorful World: My Journey of Losing Sight

 

Introduction:

Hello there! Welcome to my blog, where I’m excited to share my personal journey of losing my sight at the age of 13. My name is Erica Marie, and while my world may be different, it is still filled with vibrant colors that resonate deep within my heart. In this blog, I’ll take you through my experiences and memories, painting a vivid picture of how I perceive the world around me. As we embark on this colorful adventure, let’s borrow some lines from the beautiful song, “God’s Coloring Book,” to truly capture the essence of my journey.

 

Body:

 

1. Life Before Darkness: A Kaleidoscope of Colors

Before my world was enveloped in darkness, I was blessed with the ability to perceive colors in the most awe-inspiring ways. Every day felt like flipping through the pages of “God’s Coloring Book,” where hues danced and painted my world in vibrant shades. I remember the warmth of the sun, casting golden rays that painted the sky in hues of orange and pink, just like “God’s brushstrokes on the evening sky.”

 

2. Embracing the New Canvas of My Mind

Losing my sight was undoubtedly a life-altering event, but it didn’t diminish my ability to appreciate and envision colors. Rather, it transformed my perception into a beautiful canvas within my mind. I learned to visualize the world through the memories and descriptions I cherished, creating a unique tapestry of colors that only I could see. Just like the lyrics in the song, “God’s Coloring Book,” my mind became a sanctuary of “reds and yellows and blues” that brought endless joy and inspiration.

 

3. Unseen Colors and Unforgettable Memories

While I can no longer physically see the colors around me, the memories of vibrant moments are etched in my heart forever. I remember the softness of a velvety rose, the smell of fresh rain, and the taste of a juicy, perfectly ripe mango. These memories, like the words in “God’s Coloring Book,” serve as a constant reminder that colors are not just seen, but felt, tasted, and experienced in the depths of our souls.

 

4. Painting My World with Words

Instead of relying on physical sight, I’ve discovered the power of words to bring colors to life. Through descriptive language, I can share the vivid hues that once graced my world with others. I strive to use words that evoke the same emotions and sensations that colors do, just like the lyrics of “God’s Coloring Book” transport us to a world of imagination and beauty.

 

Conclusion:

As I wrap up this blog, I want to emphasize that losing my sight was not the end of my colorful journey, but rather the beginning of a new one. Through the canvas of my mind and the power of words, I continue to experience the world in all its technicolor glory. My hope is that by sharing my story and embracing the spirit of “God’s Coloring Book,” others may find inspiration to see beyond what their eyes perceive and discover the infinite beauty that lies within. Remember, life is a masterpiece waiting to be explored, one stroke of color at a time.

Living with vision and hearing loss!

I feel like it is easier to adapt a little better with hearing loss than it is with vision loss. I have lost more hearing  in the last seven years. So now I am an adult with hearing  loss. I was a teenager when I lost my vision. It took me a couple of years to really deal with the depression that comes with vision loss. I have adjusted quite well and it is all because of dealing with others who are deaf blind as well. Also trusting God through out all of it.

 

 

I’ve also have been put in touch with the Helen Keller National Center for the deaf blind. I never knew that there was so much support out there for the deaf blind.

 

I have met so many wonderful people who has helped and answered a lot of questions. I have had so many questions and they have been nothing but nice answering everything I have asked. I am so glad for all the support I have received.

 

Now wearing the hearing aids is a story in itself. The first thing is I have very small ears. So my hearing aids had to be made like a childs’ hearing aid. The part that goes down in the ear canal  kept coming out. So we decided to try a different ear mold and make it where didn’t go quite down in the ear canals but it fits like an  earbudd.

 Now these are working out really well. I have to adjust them but not as much as I did with the first  ear piece for the hearing aid. So now I am living life just a little bit easier.

 

The hearing aids are a big help to me because I do have a job and it requires me to use my hearing a lot.

 

I am also learning tactile sign language for the deaf blind.  As a teenager I learned the alphabette. So since I learned the alphabette I am well on my way to learning  tactile sign language.

 

 

I’m so excited to be able to communicate with other deaf blind people, who will become great friends. I really like networking and getting out there to make friends. It’s kind of hard at first but I make myself try hard and I forget about being shy.

 

I have to thank  God for some wonderful people in my life. Especially my friend  Lisa who taught me some sign language when I was a teenager.  Lisa and her husband have been working with the deaf and def blind for over 30 years now.  I am so glad we crossed paths many years ago.

 

God puts people in your life at the right  time.

 

Thank you for reading my  short blog. Until next time. KTF

 

Keep The Faith!

 

F forget!

A all!

I i’m!

T Trusting!

H Him!  

 

 

Mama Dottie

I wrote this six years ago and decided to clean it up and share.

This is something close and dear to my hart. I hope you can understand where I am coming from and how I am feeling.

 

 

 

 

 

 

 

 

 

 

 

 For those of y’all who don’t know my adoptive mom passed away on Oct 7th 2015  

 

 

 On the wings of a dove;

 

 

 My heart aches today for someone who I called mom who was taken to heaven on this date six years ago.

 

  Dottie Fraker was a very special person to me and she helped me in so many ways. She use to  tell me I  didn’t give birth to you but we do have a mother/ daughter bond.

 

 

 I just can’t find the words

 to explain  how  I’m feeling.

 

 

 I just listened to her favorite song and the tears just won’t stop flowing.

 

 I know I will see her again. She touched so many people lives. While she was on this  earth. She is truly what you would call a proverbs 31 woman.

 

 Whenever you were at her house you always felt at home. I don’t think she ever met a stranger in her life. She left foot prints on peoples hearts  when she came into their lives.

 

 I miss you so much Mama Dottie. I love you and you will never be forgotten.

 

I still have to stop myself from calling your old number to just talk or ask for a recipe.

 

I know I will see you again someday. I will close my blind eyes on this side of heaven  and wake in heaven and the first face I will see is Jesus.

 

So we have to say good bye for just a little while but we will see each other again.

 

 

Her favorite song was called , On The Wings Of A Dove.

 

I have played this song quite a bit, but it helps me a lot.

 

 

 

 

 

 On the wings of a snow white dove  he sends his pure sweet love. A sign from above on the wings of a dove.

 

 

Thank you for taking the time to read my blog. I appreciate it more than you know.

 

 

 

 

Until next time KTF Keep The Faith

Remember as much as I love you, Jesus loves you even more!

Autumn

Well Autumn  is here again and do y’all  know what that  means. Apple picking,  hay rides and hot apple cider and hot chocolate and nice days and the cool nights. There is a lot more i could write about but i’d run out of room. Oh yes let’s not forget football.

Also thinking about Autumn that is a new season and new things come about in a new season.

 

Right now my life is so different than last year at this time. I think about what was going on in my life and I cannot help but give God the glory.

I know he favors me. I am his and he is mines.

I know I have been talked about and lied on but my God knows me and he favors me.

 

I listen to a song every morning and it reminds me that I am not walking this journey alone and even though I feel like it at times he carries me  through. The title of the song is God favored me, by  Hezekiah Walker. That song gets my day started.  

 

In spite of everything I am blessed and his grace is sufficient for me. Like the season is new the day is new and even though I mess up on a daily basis  my God has me in his arms.

 

I just started a new job and it is right now overwhelming but I can do all things through Christ that strengthen me.  

Yesterday was very hard on my brain and I know the only way I got through it all was Christ. I did my six classes in three hours. Usually people do them over a week, but with Gods’ help I finished.

Faith as small as a mustard seed will move a mountain. This is my walk from now on. I have been looking at the broad picture and I just have to look on the small things.

 

Starting with me believing that the Lord has me and he will never leave me,  like man will  down here on this earth. When God says forever he means forever.

 

Friends may come and go from your life God stays with you until the end.

 

Just a few thoughts that are going through my mind. So thank you for reading my blog.

Until next time, KTF Keep The Faith. Remember as much as I love you, Jesus loves you even more!

Mustard seed faith

Thank you Lord for  taking care of me.

 

This journey started back in 2011. I was working a job that I couldn’t advance on  at all. My supervisor at the time wasn’t a very pleasant person to work for.

 

I went to the conference room for my yearly evaluation to receive my yearly raise.

Needless to say that meeting didn’t go as I expected it to go.

I was told that my attitude was bad and I would never make it on another job. Also was not given my full raise. I was disappointed when I left the conference room.

I felt like I was just kicked in the stomach and almost cried.

I couldn’t talk to my husband at the time about what was going on.

So I lasted only two more years on that job.

Work was slow and they lost some contracts. So  I was laidoff along with 27 other people. I was told it was temporarily. I was called back a couple of months later and worked for just one week and was just let go again. I didn’t know what to think about what just happened.

I have tried and tried to get back to work.

Everytime this particular company needed some people to work I called the temp service that we were told to call and get set up with. When all is said and done I was told that you are on the do not call back list. I don’t understand why this happened. I always did what I was told.

I just wasn’t going to let the supervisor and HR people talk to me any kind of way.

I felt harassed on the job and I really couldn’t report it, because I felt like everyone was against me.

I do admitt that sometimes I let my mouth get the best of me. Well when you’re getting picked at on a daily basis and your support isn’t there  then you defend yourself.

I had people watching me all the time and there were some lies told on me. I was written up for some things I didn’t do. I did not sign the write-up. I wasn’t going to take the blame for something I didn’t do. I stood my ground and lost a job because of standing up for myself.

This blog isn’t a pitty party for myself. I’m informing everyone that the Lord had different plans for my life.

He didn’t want me stuck on a job that I wasn’t about to be able to advance at and people mistreat me.

I have been trying to get some employment for the last eight years. I have been to the point where I felt like I would never work again.

My old supervisor’s words rolling around in my head and making me feel very low.

 

My confidence is a lot better now. I have the best support ever. I have the Lord on my side. When the Lord is on your side, you are on the winning side.I know I can do all things through Christ.

 

 

Philippians 4-13 says,

 

I can do all things through Christ which strengtheneth me.

 

I have some news. I went to an interview a few weeks ago and with the help of my Lord and some people speaking on my behalf I received a job. So to God be the glory.

 

Faith as small as a mustard seed can move a mountain. I trusted God and he took care of me.

 

Thank you for reading my blog. Until next timeKTF: Keep The Faith, as much as I love you, Jesus loves you even more.

Life and death all in one day. please pray for my family

Hello darkness my old enemy.  You thought you had my family once again. Jesus Christ has the light that shines within. Christ has us from the beginning until the end.

 

Isaiah 41-10

Fear thou not; for I am with thee: be not dismayed; for I am thy God: I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness.

 

Deuteronomy 31-6

Be strong and of a good courage, fear not, nor be afraid of them: for the Lord thy God, he it is that doth go with thee; he will not fail thee, nor forsake thee.

 

Although we have been visited by death our Lord will get us through this difficult time. We have each other and trust God he has  his loving arms around us.

 

This broke my heart to hear of my young cousins’ death.

During this time of mourning God has already showed grace.

My Aunt Edna and my cousin Monica has suffered a great loss. My aunt Edna has lost a grand son and gained a great grand daughter on one of the darkest days of her life.  

In spite of the storm we are going through right now there is a ray of sunshine.

 

I would like to take this time and let my family know I love y’all unconditionally. Also we need to stick together like gorilla glue.

Also a family that prays together, stays together.   

 

As much as I love you, Jesus loves you even more!